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Videoconference with Dr. Walkley and Dr. Wasserstein

The Salla Treatment and Research Foundation (A STAR for Ben, Inc., a new tax-exempt status pending organization) will convene an unprecedented think tank and family camp for researchers and families from Thursday, September 27, 2018 to Saturday, September 29, 2018.​

The program will be designed on two tracks:

Think Tank

Nearly a dozen specialized researchers from around the world will be convened by Dr. Steven U. Walkley, DVM, Ph.D and Dr. Melissa P. Wasserstein, M.D. for an intensive dialogue on research strategies and potential collaborations.  Other confirmed participants include:

Dr. David Adams, M.D., Ph.D.

Dr. Kostantin Dobrenis, Ph.D.

Dr. William A. Gahl, M.D., Ph.D.

Dr. Bruno Gasnier, Ph.D.

Dr. Marjan Huizing, Ph.D.  

Dr. Marc C. Patterson, M.D. 

Dr. Richard J. Reimer, M.D.

Dr. Roberto Zoncu, Ph.D. *via video

Family Camp

STAR families will engage in workshops, participate in sessions with specialized therapists, and enjoy social outings. Confirmed therapists include:

Joy Bieder, M.Ed, Teacher of Visually Impaired (TVI), Certified Orientation and Mobility Specialist

Kouli E. Nalpantidis, Pediatric Occupational Therapist

Azriel Novogroder, PT, Pediatric Physical Therapist trained in CME (Cuevas-MEDEK Exercises)

Dorian Pascoe, MSPT, Pediatric Physical Therapist

Nutritionists and dietitians from Montefiore Hospital / Albert Einstein College of Medicine 

Families and researchers will have the opportunity to meet one another as we launch efforts for the pursuit of innovative research and effective treatments for Salla disease. 


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