Salla Treatment And Research

Found tion

To support Salla disease treatments, research, education, awareness, & family networks

Jess and Michael Foglio

Jul 22, 2018
1 min

Welcome!

We are excited to embark on this new, rare journey. Together with families and researchers from around the world, we are hopeful to find a viable treatment f...

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Ian and Kristina Horsted

Nov 27, 2018
3 min

The Salla Family

Ever since our conference in September, I feel very connected to our little "Salla Family" out in the world. We communicate through phone calls, messages, a...

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Ian and Kristina Horsted

Nov 6, 2018
3 min

How was your day?

Today Jackson and his classmates had a special day. Since it was the 50th day of school, the kindergarteners dressed up in 50’s style clothing for a sock hop...

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Ian and Kristina Horsted

Oct 29, 2018
2 min

Special Treasures

I was putting a few things away in Jackson's closet today while he was at school, and I came across his memory box. You know, the container many of us have ...

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Jess and Michael Foglio

Oct 13, 2018
1 min

A wonderful meeting happened! Research is on the horizon.

Almost 2 weeks ago, families from around the world met for the first time! It was empowering to be together and give our support to the esteemed doctors who...

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Jess and Michael Foglio

Oct 10, 2018
1 min

AND THE RESEARCH BEGINS!

On September 27th and 28th, S.T.A.R. hosted doctors and families from around the world! Families participated in therapy sessions while doctors convened for...

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Jess and Michael Foglio

Sep 1, 2018
1 min

A Party with a Purpose!

We are so excited to host doctors and families in Tarrytown, NY! September 27th and 28th will be the beginning of the research for the rare Salla Disease. D...

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Jess and Michael Foglio

Jul 23, 2018
1 min

A sip for you, a sip for me!

We are working with a local wine distributor and giving out free samples each week at the Farmer's Market in Riverdale! 10 percent of all sales go to Salla ...

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Jess and Michael Foglio

Jul 23, 2018
1 min

A sip for you, a sip for me!

We have been working with a local wine distributor and sharing his product in our farmer's market! 10 percent of all wine sold goes toward Salla Treatment A...

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Jess and Michael Foglio

Jul 22, 2018
1 min

Videoconference with Dr. Walkley and Dr. Wasserstein

The Salla Treatment and Research Foundation (A STAR for Ben, Inc., a new tax-exempt status pending organization) will convene an unprecedented think tank and...

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Jess and Michael Foglio

Jul 22, 2018
1 min

Salla Think Tank & Family Camp

We are really excited for the upcoming event. Check out how nice this hotel is -- fancy!

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