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A wonderful meeting happened! Research is on the horizon.

Almost 2 weeks ago, families from around the world met for the first time! It was empowering to be together and give our support to the esteemed doctors who convened to begin their research on Salla disease! It was a special few days, and we look forward to the research that will happen in the future!




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We are so excited to host doctors and families in Tarrytown, NY! September 27th and 28th will be the beginning of the research for the rare Salla Disease. Doctors who represent Stanford, Yale, Mayo C

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