A Party with a Purpose!
We are so excited to host doctors and families in Tarrytown, NY! September 27th and 28th will be the beginning of the research for the rare Salla Disease. Doctors who represent Stanford, Yale, Mayo Clinic, Berkeley, National Institute of Heath, MonteFiore, Einstein University, and University of Paris will team with Grammy Award Winning Jazz Artist, John Patitucci to begin research and raise funding FOR the research that lies ahead! Families will also join us, all who have children who suffer from SALLA! There is POWER in families and those fighting to heal their children!