Our Newest Partners

Click here to learn about some of the top researchers of Salla disease, including our newest partners from the Children's Hospital of Orange County (CHOC).

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IN THE NEWS

Riverdale, NY couple raises funds for 3-year-old son with 'extraordinarily rare disease

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"Jerseys for Jackson" raises awareness of Salla disease in Sioux Falls, SD

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Conmovedora Historia De La Pequeña Martina Una Niña Con Una Extraña Enfermedad

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‘Kori’s First Annual Walk and Roll Family Fest’ brings community together

OUR STARS

Visit our STAR pages for information on individual families and their updates.