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Jess and Michael Foglio

A wonderful meeting happened! Research is on the horizon.

Almost 2 weeks ago, families from around the world met for the first time! It was empowering to be together and give our support to the...

Jess and Michael Foglio

A Party with a Purpose!

We are so excited to host doctors and families in Tarrytown, NY! September 27th and 28th will be the beginning of the research for the...

Jess and Michael Foglio

A sip for you, a sip for me!

We have been working with a local wine distributor and sharing his product in our farmer's market! 10 percent of all wine sold goes...

Jess and Michael Foglio

Videoconference with Dr. Walkley and Dr. Wasserstein

The Salla Treatment and Research Foundation (A STAR for Ben, Inc., a new tax-exempt status pending organization) will convene an...

Jess and Michael Foglio

Welcome!

We are excited to embark on this new, rare journey. Together with families and researchers from around the world, we are hopeful to find...

Jess and Michael Foglio

Salla Think Tank & Family Camp

We are really excited for the upcoming event. Check out how nice this hotel is -- fancy!

To support Salla disease treatments, research, education, awareness, & family networks