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A wonderful meeting happened! Research is on the horizon.

Almost 2 weeks ago, families from around the world met for the first time! It was empowering to be together and give our support to the...

We are so excited to host doctors and families in Tarrytown, NY! September 27th and 28th will be the beginning of the research for the...

We have been working with a local wine distributor and sharing his product in our farmer's market! 10 percent of all wine sold goes...

The Salla Treatment and Research Foundation (A STAR for Ben, Inc., a new tax-exempt status pending organization) will convene an...

We are excited to embark on this new, rare journey. Together with families and researchers from around the world, we are hopeful to find...

We are really excited for the upcoming event. Check out how nice this hotel is -- fancy!